Crown Princess Mette-Marit diagnosed with chronic lung disease: October 2018

[iceflower]

Please stay respectful towards each other and the people you discuss. Thank you!

[Lady Daly]

I was reading through peoples posts here and touched with your affection and concern for Mette-Marit. I was also just over on her events thread noticing pictures of her currently looking pretty good.

Although I was a critical care RN for many years and primarily worked with cardiac patients, heart and lungs by function and proximity work closely together, so I have worked with pulmonary fibrosis patients at times over the years. I searched my literature in hopes, for those interested, to find a broad generic medical overview of pulmonary fibrosis for education purposes only.

I like the Mayo Clinic's overview and would like to leave it here for those interested.
https://www.mayoclinic.org/diseases-...s/syc-20353690

I hope this is ok with the mods, it is very generic in scope. Thank you.

[Alisa]

It speaks volumes of her health if she can ski with her lung condition!

[fortimo]

Yes, it is strange.

[wartenberg7]

Originally Posted by Alisa

It speaks volumes of her health if she can ski with her lung condition!

Don´t you feel ashamed claiming this?!
Would you prefer the CPcess to be even more sick so that she wouldn´t be able to ski at all?!
When it comes to this disease, what a person is able to do or not depends on how far it has progressed! Luckily, this Fibrosis has obviously not progressed that far, the Princess wouldn´t be able to do some sporting activities in the open air. By the way, moving in fresh air cannot be bad for any disease.

[REAL COUNTESS]

I hope MM feels better soon. I am glad she can go skiing. Maybe having this lung disease the cold air is better then heat? She looks good.

[Friedrich Karl II]

Originally Posted by Alisa

It speaks volumes of her health if she can ski with her lung condition!

That someone has lung disease not mean that they couldn't do anything. It totally depends how far disease has progressed. M-M might has still on its early stage so it not necessareity affect her so much.

[Tatiana Maria]

Originally Posted by wartenberg7

Would you prefer the CPcess to be even more sick so that she wouldn´t be able to ski at all?!

The post by Alisa did not say this. Her comment was of roughly the same meaning as yours:

Originally Posted by Alisa

It speaks volumes of her health if she can ski with her lung condition!

Originally Posted by wartenberg7

Luckily, this Fibrosis has obviously not progressed that far, the Princess wouldn´t be able to do some sporting activities in the open air.

Originally Posted by fortimo

Yes, it is strange.

Originally Posted by Friedrich Karl II

M-M might has still on its early stage so it not necessareity affect her so much.

When the Crown Princess's diagnosis was announced her doctors stated that fortunately she appeared to have an atypically slow-progressing case of pulmonary fibrosis.

[Somebody]

I guess the main reason some might be surprised is that the Crown Princess has taken on very little royal engagements since the announcement - and even once explained how happy she was to have more time for herself to do the things she enjoyed to do (or something like that).

Glad to see that she is enjoying a day of skiing (which might mean that she'll need some time to recover but considers it worth it) but understanding of those who don't fully understand the choices they make in terms of work load.

[MissJanet]

Interesting. In my fully subjective perception, MM did more official engagemensts since the anouncement of her illness than before.



I hope she heals well and soon, tailbone injuries hurt like hell and really limit the mobility.

[rominet09]

Originally Posted by Tatiana Maria

The post by Alisa did not say this. Her comment was of roughly the same meaning as yours:









When the Crown Princess's diagnosis was announced her doctors stated that fortunately she appeared to have an atypically slow-progressing case of pulmonary fibrosis.

Very happy to read that !

[Denville]

Originally Posted by MissJanet

Interesting. In my fully subjective perception, MM did more official engagemensts since the anouncement of her illness than before.



I hope she heals well and soon, tailbone injuries hurt like hell and really limit the mobility.

It would be very odd if she did. She wasn't the hardest working royal but her number of engagements seems to have dropped drastically since she has been ill, not surprisingly...

[Somebody]

She herself said in an interview that she is happy to have much more time to herself as she has less royal duties; she can 'pick and choose' to do an engagement (mostly joining her husband) if she feels well and if she doesn't or prefers private activities she can do so as well.

Checked the number of days with engagements to get a better idea of how her workload changed:
YEAR AFTER DIAGNOSIS: 34 in 2019 (including several 'sports events' and activities related to Ingrid-Alexandra's confirmation; and only 2 individual engagements - with days of each other; several others that she would normally do on her own now had Haakon scheduled as well; probably as a 'back-up option' in case Mette-Marit would not be able to attend)
YEAR PRIOR TO DIAGNOSIS: 96 in 2017 (and a higher number of days with 3 or more engagements; including 28 solo engagements)

So, she is carrying out about a third of the engagements she carried out previously; and hardly any on her own.

[Alisa]

Originally Posted by wartenberg7

Don´t you feel ashamed claiming this?!
Would you prefer the CPcess to be even more sick so that she wouldn´t be able to ski at all?!
When it comes to this disease, what a person is able to do or not depends on how far it has progressed! Luckily, this Fibrosis has obviously not progressed that far, the Princess wouldn´t be able to do some sporting activities in the open air. By the way, moving in fresh air cannot be bad for any disease.

No.

The public does not receive regular updates on the progress of Mette-Marit's lung condition. So it is left up to viewers to discern by her activities- the status of her health. Hence my comment.

[W.Y.CII]

I could be wrong but IIRC when the news/announcement came out it stated that M-M is at the early stage of the disease. So it's not that surprising that she still goes skiing if her condition allows her to do so (she doesn't stop skiing after she was diagnosed I believe?). And skiing is a common or even daily thing for Norwegian? They just live with that environment and weather, probably just as normal as hiking for most of us. Nothing is really that strange to me.

[rchainho]

I read ib some articles that people who suffers from this diseases have few years if living

[kathia_sophia]

I did read that the life expectancy of a person with pulmonary fibrosis is 2-5 years from the time of diagnosis. But as others said, MM has, per her doctors, an atypically slow-progressing case of pulmonary fibrosis. With her case and proper treatment, she can live longer (unfortunately there is no cure, yet).


As for skiing, if she feels great, then I don't see any problem at all. Actually, to be honest, if I had a deadly disease, I would try to live my life to the fullest. I hope MM is enjoying her life and doing the things she loves, and be with the people she loves.

[rchainho]

I hope that could be longer than 5 years.

[Lady Daly]

Mette-Marit's diagnosis was first announced back in Oct. 2018. At the time her doctors did not clarify the cause of her pulmonary fibrosis other than it was "not related to environmental or lifestyle factors". Her physician Professor Bjøro also stated at the time her "lung changes have already been followed for several years, and that the development of the disease during this period has been slow. It has not yet been clarified whether the lung disease is part of a more comprehensive autoimmune disease process, or whether there are other causes underlying the lung changes."
https://www.kongehuset.no/nyhet.html...6101&sek=26939

While Mette-Marit's prognosis is very concerning, prediction of longevity is difficult. Here is the American Lung Association's Pulmonary Fibrosis website. Click on menu to learn more about the disease if interested. Here is their information on life expectancy.
https://www.lung.org/lung-health-dis...ife-expectancy

[rchainho]

https://amp.focus.de/kultur/royals/g..._13240899.html

Crown Prince Haakon speaks about incurable lung disease in his wife Mette-Marit

The diseases talked by haakon.