Crown Princess Mette-Marit diagnosed with chronic lung disease: October 2018

[fortimo]

Here is the TV-program, where the CP-couple said, that the Crownprincess has lung disease:

https://www.nrk.no/norge/kronprinses...der-1.14263076

[Empress Merel]

Man, this is shocking news. A woman so young shouldn't have to go through this. I hope she can give this diagnosis a place in her mind and continue to do good things with the years that are still ahead of her.

I especially feel for the children. I too have a mother with a chronic lung disease and I can't tell you the amount of times she had to go hospital or an ambulance had to come in emergency. It's scary sh*t.

[HereditaryPrincess]

I was shocked when I read this news; it's so sad that Mette-Marit has had this disease at such a young age, though on the other end of the spectrum it must be comforting somewhat to have an official diagnosis. I have a long-term (invisible) disability which I've had for most of my childhood though was only officially diagnosed with it last year, so I can understand how relieved, on some levels, Mette-Marit and the family must be feeling right now.
I do feel awful for the children, Haakon, and Norway as a whole though, at what I can imagine is a very scary and unpredictable time for them. I hope Mette-Marit pulls through with the best of care, which we can be reassured that she will get.
Does anyone know if there is an address in Oslo where we can send messages of support that will go directly to a secretary or member of the RF?

[Mademoiselle Lilo]

shocked saddened and some how speechless by the news,
i hop she got the best care and treateements that she will have many years ahead of her.

[marian]

Does anyone know if there is an address in Oslo where we can send messages of support that will go directly to a secretary or member of the RF?[/QUOTE]

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[marian]

Better in English
Contact information - kongehuset.no

[Susan D]

If Crown Princess Mette-Marit cannot do her duties, Princess Ingrid Alexandra will have to start her public role earlier than otherwise. I wish Princess Mette-Marit good health.

[HereditaryPrincess]

Thank you for those who sent links to addresses. I'll be sure to check them out.

[camelot23ca]

Originally Posted by Susan D

If Crown Princess Mette-Marit cannot do her duties, Princess Ingrid Alexandra will have to start her public role earlier than otherwise. I wish Princess Mette-Marit good health.

Ingrid Alexandra has been taking part in public events with her parents since she was small so I have no doubt that, when the time comes, she’ll fulfill her role beautifully. That being said, she’s still a very young girl and IMO her main focus should be her education until she’s finished university, (obviously with an increasing number of royal events added in the older she gets). Especially since the actual heir to the throne, Haakon, is perfectly healthy and can handle his obligations by himself if need be.

And again, the press release said MM appears to have an atypical, slowly progressing form of lung fibrosis. There’s no way to spin this as good news, but it’s quite possible with close monitoring and excellent overall care she’ll do better than expected.

[Hendrik-Jan77]

Originally Posted by camelot23ca

Ingrid Alexandra has been taking part in public events with her parents since she was small so I have no doubt that, when the time comes, she’ll fulfill her role beautifully. That being said, she’s still a very young girl and IMO her main focus should be her education until she’s finished university, (obviously with an increasing number of royal events added in the older she gets). Especially since the actual heir to the throne, Haakon, is perfectly healthy and can handle his obligations by himself if need be.



And again, the press release said MM appears to have an atypical, slowly progressing form of lung fibrosis. There’s no way to spin this as good news, but it’s quite possible with close monitoring and excellent overall care she’ll do better than expected.

And there is also Princess Martha Louise who will also be there for her brother and sister-in-law. She will probably take on some public duties when Mette Marit is not in that position and while her niece is still young.

[MARG]

For me, this answers one or two questions. People have been very harsh on Mette-Marit when it comes to her workload which I thought was odd because she comes across as a loving wife and mother and being lazy is at total odds with her persona.

As stated, there is no good way to spin this except perhaps she will be afforded a greater degree of kindness and the Norwegian people will take her to their hearts and surround her with love and respect for the work she has been doing and celebrate that which she can still manage.

For a woman of her age, it must have been really so hard to struggle along with this "invisible" illness for so long before receiving such a devastating diagnosis. Sharing it with the nation cannot have been easy speaking of what is a slow death. I am sure she will receive the very best treatment that the world has to offer and it will perhaps allow her to see all her children grow to adulthood.

[ladongas]

Are there any Norwegian hospitals with a lung transplant program?

[An Ard Ri]

Like so many here I was both shocked and saddened by the news.

[WillVictoria]

Originally Posted by ladongas

Are there any Norwegian hospitals with a lung transplant program?

https://organdonasjon.no/faq-kategor...-list/?lang=en

Going based on this Norweigan website advocating for people to become organ donors there are about 500 people on the waiting lists for various organs. Not all of them need lungs, but lungs are the 4th most in demand organ after kidneys, livers, and hearts.

One potential issue is Mette Marit will have to "wait her turn" as there would probably be a scandal if the Crown Princess "jumped the line" over other equally needy patients. The issue is you never know how fast the line will go and, given she has a slow-progressing disease and is recently diagnosed, she might be towards the back.

[ROYAL NORWAY]

Originally Posted by ladongas

Are there any Norwegian hospitals with a lung transplant program?

Yes, Rikshospitalet (The National Hospital) in Oslo, which is one of four main campuses of Oslo University Hospital. - But the number is limited by the availability of useful lungs from donors, and just about 30 transplantations take place each year.

Posted some information about it in post 39 BTW.

But according to medical-experts that Norwegian-television has spoken to, they ''don't see this as a very likely alternative for her,'' especially not if the disease has attacked other organs in her body (something her doctors don't know yet).

[carlota]

Originally Posted by ROYAL NORWAY

Yes, Rikshospitalet (The National Hospital) in Oslo, which is one of four main campuses of Oslo University Hospital. - But the number is limited by the availability of useful lungs from donors, and just about 30 transplantations take place each year.

Posted some information about it in post 39 BTW.

But according to medical-experts that Norwegian-television has spoken to, they ''don't see this as a very likely alternative for her,'' especially not if the disease has attacked other organs in her body (something her doctors don't know yet).

how can the disease attack other organs exactly?

this is why i am a registered organ donor and think more people should consider organ donation.

yes, my guess is that 'jumping the line', even if she is the crown princess will be extremely bad PR, although surely in private hospitals queues are shorter, so a transplant could perhaps be quicker to take place? i am uneducated with respect to whether private hospitals even do transplants in norway, my initial guess is that only public hospitals would get organs anyway.

[Tarlita]

Very sad news for the Crown Princess and all her family. It will be hard at times for the Crown Prince to look stoic in the face of difficult times ahead.
The whole family must be very shocked by this diagnosis.
I wish her well in the difficult times ahead. Hopefully medical science can find a way to slow this down.
Other royal families must be shocked too.

[Countessmeout]

Originally Posted by carlota

how can the disease attack other organs exactly?

this is why i am a registered organ donor and think more people should consider organ donation.

yes, my guess is that 'jumping the line', even if she is the crown princess will be extremely bad PR, although surely in private hospitals queues are shorter, so a transplant could perhaps be quicker to take place? i am uneducated with respect to whether private hospitals even do transplants in norway, my initial guess is that only public hospitals would get organs anyway.

It's not a matter of hospital but of organs. No matter where you have the surgery. There is only so many organs and there is a waiting list. Norway seems to have a shortage. Private health wouldn't help get get organs first.

As for other organs it would mainly be the heart. The right side of the heart can be damaged with time as it has to pump harder to get oxygen to areas.

[carlota]

Originally Posted by Countessmeout

It's now matter of hospital but of organs. No matter where you have the surgery. There is only so many Urbana and there is a waiting list. Norway seems to have a shortage. Private health wouldn't help get get organs first.

As for other organs it wpuld mainly be the heart. The right side of the heart can be damaged with time as it has to pump harder to get oxygen to areas.

that makes sense. yes, i guess statistics aren't much consolation given there are only 30 lung transplants a year.

my guess is also that there may be a waiting list, but not all organs are compatible with everyone so transplants may not follow a strict order, who knows, maybe she is lucky finding a good donor.

[marian]

I think maybe her sister and her brothers can help her. Or not?