Crown Princess Mary as Patron of Rare Disorders Denmark: 2005 - 2020

[Amelia]

Thank you so much for posting the two videos and the photographs. Great to Mary undertaking such a valuable role. I find it quite endearing that she always removes her glove before she begins to shake hands with people.

 

[Paty]

The Crown Princess has made two video adresses (Danish and English) on the ocasion of the Rare Disease Day 2009 February 28th

Here is the link for the videos:
Sjældne Diagnoser

Also you can see the video in English in the Rare Disease Day Official Web
Rare Disease Day 2009 - DENMARK

 

[UserDane]

Thank you Paty
A very nice and relevant address by CP Mary

 

[Madame Royale]

HRH has such a beautiful voice. Very striking, imo.

Mary still sounds to me, very Australian when she speaks english. Her native tongue will dare I sare, never be lost which I think is quite lovely.

 

[sgl]

Thanks for the links, Paty! Mary does have a lovely voice, and she sounds very knowledgeable and compassionate in the videos.

 

[ChantalC]

Princess Mary has a very nice voice. She spoke Danish and English in these videos. Thank you for posting these videos, Paty.

 

[Lumutqueen]

She does have a lovely voice, she is wonderful with children, the little gilr Marie looks so happy.
And she always has a way with picking stunning outfits.
x

 

[agnessa]

I found this event although it was unofficial - Mary at 'Rare Disorders' on unofficial visit, 19 January 2010

http://www.sjaeldnediagnoser.dk/00787/01087/

 

[marfre]

Works fine now, thanks for finding this information
There will be some pictures come out later regarding this visit.

 

[Terri Terri]

Works fine now, thanks for finding this information
There will be some pictures come out later regarding this visit.

Photos are now online - Sjældne Diagnoser

 

[marfre]

Thanks for the link, what a lovely photo of Mary with the little girl Mille. I like the way Mary sat next to her to have a chat, she is such a natural with chldren.

 

[Emmily]

Thanks for the link, what a lovely photo of Mary with the little girl Mille. I like the way Mary sat next to her to have a chat, she is such a natural with chldren.

That is a sweet picture! Wonder if this little girl gave Mary the flowers when Mary arrived or if Mary let the little girl have them.

 

[JessRulz]

Crown Princess Mary will today attend an event at the Disability Organisation's House in Taastrup, to mark the upcoming Rare Diseases Day (February 28).

Arrangement i Handicaporganisationernes Hus i anledning af årets Sjældne-Dag - Kongehuset

 

[Roskilde]

Here's some first pictures:
http://sn.dk/modules/xphoto/cache/11/655111_950_1200_16_0_2392_1653_2.jpg (A delightful picture, isn't it )
http://img.kalooga.com/thumb?url=ht...8633589e635881d607a4&method=fit&size=1440x720

Article and gallery:
Mary spredte glæde hos sjældne børn - sn.dk - Forsiden - Storkøbenhavn - Taastrup

"A smiling happy and enthusiastic Crown Princess Mary visited today The Disability Organisations House. Mary spread great joy when she met children with rare diseases and together they saw an exhibition of clown drawings hospitalized children have made in support of hospital clowns.
- I've been looking much forward to seeing all of your drawings, Mary told the children.
The proceeds from the exhibition will go to the Danish Hospital Clowns who every day spreads joy in pediatric wards in hospitals."


ADDED:
http://24nyheder.dk/wp-content/gall...eldne-dag-2015/2015H.K.H.KRONPRINSESSEN04.jpg
http://24nyheder.dk/wp-content/gall...eldne-dag-2015/2015H.K.H.KRONPRINSESSEN01.jpg
http://24nyheder.dk/wp-content/gall...eldne-dag-2015/2015H.K.H.KRONPRINSESSEN03.jpg

 

[iceflower]

.

Here's an additional gallery of the visit:



** ppe gallery **


** pm mixed gallery: Mary très stylée en Hugo Boss **


** BB: Klovnerier med kronprinsesse Mary ** translation **

 

[Roskilde]

More pictures:

http://kongehuset.dk/materialemappe...es-hus-i-anledning-af-arets-sjaldne-dag-3.img
http://kongehuset.dk/materialemappe...es-hus-i-anledning-af-arets-sjaldne-dag-4.img
https://scontent-ams.xx.fbcdn.net/h...=326a64f4473a6a7216af1799b5fe7ceb&oe=55910BD8
https://scontent-ams.xx.fbcdn.net/h...=4c9739eabd2623220ac59acb8e94a3ee&oe=557D3E66

Royalista article and gallery:
Clown blows soap bubbles at Crown Princess Mary | Royalista

Video from BB:
http://www.billedbladet.dk/kongelige/danmark/video-kronprinsesse-mary-klovnede-med-boernene

**

Two larger and lovely pictures from Kongehuset:

http://kongehuset.dk/materialemappe...es-hus-i-anledning-af-arets-sjaldne-dag-3.img
http://kongehuset.dk/materialemappe...es-hus-i-anledning-af-arets-sjaldne-dag-4.img

The Court informs us that after the Rare Disorders event Mary also visited three more patronages during her visit to Disability Organisations House, including The Danish Stroke Association:
http://kongehuset.dk/materialemappe...es-hus-i-anledning-af-arets-sjaldne-dag-2.img

http://www.dailymail.co.uk/tvshowbi...tml?ITO=1490&ns_mchannel=rss&ns_campaign=1490

 

[polyesco]

this photo is just beautiful
http://sn.dk/modules/xphoto/cache/11/655111_950_1200_16_0_2392_1653_2.jpg

lovely smile
http://ppe-agency.com/500px/Feb2015/PPE15022625.jpg

 

[Roskilde]

this photo is just beautiful
http://sn.dk/modules/xphoto/cache/11/655111_950_1200_16_0_2392_1653_2.jpg

The little girl's mother, Camilla Jensen:
"Oh it warms a mother's heart to see your daughter laugh with the Princess-and I'm bubbling proud of this is my daughter !! she was so sweet and attentive towards the children- Mary- a warm and good human being!"

https://www.facebook.com/2352278166...5227816664642/353134278207328/?type=1&theater

ADDED:
Two more pictures
https://scontent-ams.xx.fbcdn.net/h...=7cc1b50694047d573c73d06d2bef71d7&oe=554B72CD
https://fbcdn-sphotos-c-a.akamaihd...._=1435947663_95c58d2419ecfcc48980957c533cead5

 

[polyesco]

there are some pictures of Mary on Newscom . A very cute one of Mary with the red nose on
Newscom - Multimedia for Websites and Publishers

search crown princess mary

 

[Roskilde]

Yes Crown Princess Mary suddenly became Clown Princess Mary
https://fbcdn-sphotos-b-a.akamaihd...._=1435928119_1c8fcffd990a83129a0fa34f40da381c
https://fbcdn-sphotos-e-a.akamaihd...._=1435699132_a90db0571c01fa2ffac2bbf48d392f09
https://scontent-ams.xx.fbcdn.net/h...=994fd0e9946f9a9527cfab1b7574d8d1&oe=558F01DF
https://scontent-ams.xx.fbcdn.net/h...=fbfefb8ca3d3f409f4246fbf707f5a13&oe=55923A07
https://fbcdn-sphotos-g-a.akamaihd...._=1433912518_f91ed72a14f8c42f87b75ceff0b740e8
https://scontent-ams.xx.fbcdn.net/h...=6385336bff751d786c66b87728daab1c&oe=559285DB
https://scontent-ams.xx.fbcdn.net/h...=31f97c1196066ae80d6f169fd112869f&oe=5593009D
https://scontent-ams.xx.fbcdn.net/h...=3c67050058c123ab7c577575f9d47e0a&oe=554E4E68

 

[royal rob]

She really works hard always so busy.



Sent from my iPhone using The Royals Community

 

[roseroyal]

The little girl's mother, Camilla Jensen:
"Oh it warms a mother's heart to see your daughter laugh with the Princess-and I'm bubbling proud of this is my daughter !! she was so sweet and attentive towards the children- Mary- a warm and good human being!"

https://www.facebook.com/2352278166...5227816664642/353134278207328/?type=1&theater

ADDED:
Two more pictures
https://scontent-ams.xx.fbcdn.net/h...=7cc1b50694047d573c73d06d2bef71d7&oe=554B72CD
https://fbcdn-sphotos-c-a.akamaihd...._=1435947663_95c58d2419ecfcc48980957c533cead5

All- Wonderful! I almost don't have words here! I cried. That mother summed it up well. CPM is an amazing lady whom Denmark is blessed to have. One thing I noticed and loved is that Mary held the kids without giving a hoot how crumpled her outfit got. May not sound big, but it is.

 

[Roskilde]

Pictures from Hello

Crown Princess Mary visits a children's hospital in Taastrup - hellomagazine.com

 

[roseroyal]

Pictures from Hello

Crown Princess Mary visits a children's hospital in Taastrup - hellomagazine.com

Wonderful photos.

 

[Muhler]

Summary of article in Billed Bladet #10, 2015.
Written by Marianne Singer.

As patron for Rare Disorders (an amalgamation of 49 associations) Mary visited the town of Høje Taastrup, where Rare Disorders have their office, in order to put focus on the important moral job the hospital clowns do, not least for children who are very ill or who are often committed to hospital.
Having arrived Mary began talking to the children present, who all have an disorder. One of them was four year old Clara, whom Mary too up on her arm, while wearing a red clown's nose. Mary took of her nose: "It's better on you" and put the red nose on the nose of the delighted Clara.
Clara suffers from a rare metabolism disorder.

Before Mary arrived the hospital clown, Ludo, had entertained the children by measuring their hair with a tape-measure. Ludo approached Mary: "Shall I make a speech-bubble for you (informal you)"? Cool idea thought Mary so Ludo blew soap-bubbles and Mary suggested to the children: "Let's try and make them fly higher", so the children ran around and waved the bubble up in the air.
But Mary also got a present to take home to Christian and Isabella, two framed posters. The posters will be sold to help fund Rare Disorders.
Towards the end the press was asked to leave while spoke more privately with the children and their parents.

Queen Letizia is also patron for an organization for rare disorders.

 

[marfre]

Thanks Muhler for the translation, Mary has certainly been very busy, bubbles are wonderful for keeping children active.

this photo is just beautiful
http://sn.dk/modules/xphoto/cache/11/655111_950_1200_16_0_2392_1653_2.jpg

lovely smile
http://ppe-agency.com/500px/Feb2015/PPE15022625.jpg

Agree, the photo is beautiful as are the princess and the little girl, happy smiles.

 

[Roskilde]

Kronprinsesse Mary støtter løbere med sjældne sygdomme | BILLED-BLADET

The organization Rare Disorders invites on the 28th February to a special jogging in Copenhagen and Aarhus.

Crown Princess Mary is the patron of the organization and encourages everyone to give the organizers a helping hand.

- It's good to be something special. But sometimes it offers challenges not to be like everyone else. Thousands of Danes lives with rare diseases that only few others know about. Therefore, it can be hard to find someone you can share challenges and experiences with, says Crown Princess Mary in connection with the two rare joggins in Copenhagen and Aarhus.

- Rare diseases are usually inherited and thus the patients are often children. This gives rise to much uncertainty and worry for the entire family. But just because they are so few the rare families shall not be overlooked. They need attention, expertise and a helping hand. I hope that Rare-run can help to create new relationships across diagnoses and life situations, says the Crown Princess, who unfortunately can't be present at the special run for children and adults in Copenhagen and Aarhus.
*
Crown Princess Mary and Crown Prince Frederik will be away on a official trip from the 28th February when the Rare joggings will find place.

**

ADDED:
You can say it's a shame that the official visit find place at the same time at these joggins. Because otherwise I'm more than convinced we would had seen Mary in jogging clothes having participated in the running races herself - and that would has been a nice and great event

 

[eya]

As patron of the Rare Diagnoses organization, The Crown Princess Mary sent this video greeting to participants on Rare Day, which is marked every four years on the rarest day: 29 February.

https://www.facebook.com/video.php?v=241723023510794