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  #161  
Old 12-13-2015, 12:26 PM
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Originally Posted by Duc_et_Pair View Post
And if there are any royals with haeomophilia: no problem. Unlike in Victorian Era, today with appropriate treatment the quality of life as well the lifespan are pretty normal.
I don't think it's possible for any reigning house to develop Victoria-related haemophilia at this point unless they marry other descendants of Victoria. Well, at least not in the main-lines - it's possible for the descendants of Prince Guillaume and Princess Sibilla to develop it, as her grandmother was a known carrier.

Presently, Harald V, Elizabeth II, the Duke of Edinburgh, Margrethe II, Felipe VI, and Carl XVI Gustaf are all descended from Victoria, but each one has at least 1 non-haemophiliac man in the line of descent between them and Victoria (or in the case of the DoE, is a non-haemophiliac man).
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  #162  
Old 12-13-2015, 01:23 PM
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Elizabeth descends through Edward. VII who wasn't a hemophiliac so he can't pass it down. Alexandra, Mary and Elizabeth Bowes Lyon aren't descendants of Victoria.

Philip's Great Grandmother Princess Alice the 2nd daughter of Victoria was a carrier. She passed down to 3 children but not Victoria who is the grandmother of Philip. Her sons George and Louis didn't have hemophilia and neither does Philip so his mother wasn't a carrier. So the current British royals isn't at risk from hemophilia even though Elizabeth and Philip both descend from Victoria.


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  #163  
Old 12-13-2015, 01:53 PM
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We know Alice was a carrier because one of her sons was a haemophiliac, and we know her daughters Irene and Alix were carriers because some of their sons were haemophiliacs - and we know that one of Alix's daughters was a carrier, because testing was done on the remains of all their children showing that one, thought to be Maria, was a carrier.

We don't actually know that Alice's other daughters weren't carriers - Elisabeth and Marie had no children, while Victoria theoretically could have been a carrier and simply not passed it on to her sons. Of her daughters, Louise only had a stillborn child, and Alice only had one son (the DoE). It's statistically unlikely, but still possible.
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  #164  
Old 12-13-2015, 03:14 PM
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Alice had 4 daughters plus Philip and there isn't hemophilia in the children of the daughters of Alice. So she like her mother Victoria were probably non carriers.


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  #165  
Old 12-13-2015, 04:13 PM
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Which is why I said it was statistically unlikely.
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  #166  
Old 12-16-2015, 03:47 AM
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Originally Posted by Ish View Post
We know Alice was a carrier because one of her sons was a haemophiliac, and we know her daughters Irene and Alix were carriers because some of their sons were haemophiliacs - and we know that one of Alix's daughters was a carrier, because testing was done on the remains of all their children showing that one, thought to be Maria, was a carrier.
We all know now that Alexei had haemophilia, but I know I read that one of his sisters showed signs of the disease as well, since she bled more than she should have during what was a simple surgery. I don't remember which sister it was, but maybe it was Maria?
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  #167  
Old 12-16-2015, 05:07 AM
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Yes, the doctors apparently became a bit panicky when Maria's bleeding wouldn't stop during minor dental surgery. However, Maria must have suffered from a very mild form of haemophilia, if at all, as otherwise she would have bled extensively when she commenced menses.
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  #168  
Old 12-16-2015, 10:44 AM
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Maria is believed to have been a symptomatic carrier. She wouldn't have been an actual haemophiliac, but she did have some of the symptoms of it, including lower than normal blood clotting. When they tested the remains of the family in 2009 it was discovered that Alexei had haemophilia B (which is the only way we know what type of haemophilia the descendants of Victoria had; none of the others were ever tested), and that Alix and one of the daughters was a carrier. There's dispute as to which daughter; the Russians have said it was Anastasia, the Americans Maria.
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  #169  
Old 07-29-2017, 09:18 AM
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Alice's daughter Irene married Prince Henry of Prussia. They had 2 hemophiliac sons but no daughters. One of Irene's sons died at age 4.
I'm living in the near of the mausoleum which entombs his body. Do anyone want to see it? I made photos of it with my smartphone. Also his parents are there.
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  #170  
Old 07-29-2017, 09:28 AM
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That would be very interesting. Thank you, Jotti. That son's death was awful, getting down clumsily from a table top where he'd been messing about as four year olds do.
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  #171  
Old 07-29-2017, 09:58 AM
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That would be very interesting. Thank you, Jotti. That son's death was awful, getting down clumsily from a table top where he'd been messing about as four year olds do.
Here they are
the child's grave is the one in front of the windows. There is also a YouTube video of the mausoleum taken by a drone:
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  #172  
Old 08-29-2017, 07:44 AM
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How sad...

Also, it is not long ago that I realized that Prince Leopold (as in the one of Queen Victoria's sons, who had the disease) was one of our current king's great grandfathers. But the link from Leopold to Carl XVI Gustaf goes through Leo's son, Charles Edward. And since a son can't inherit the disease from his father, it has luckily never come to our royal family. Charles Edward's sister Alice was a carrier though and had at least one son who was a sufferer.
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  #173  
Old 08-29-2017, 07:55 AM
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Interesting, and sad. I wonder who looks after the mausoleum, keeps it dust and cobweb-free? It doesn't look as if any flowers are ever left and the building appears to be in a rather lonely spot.
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  #174  
Old 09-02-2017, 11:42 AM
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a while ago there was a commemoration at this mausoleum. There were also a picture of the guests but it's no longer online. I was wondering why they stood in front of the parents grave and laid down flowers for them. It seems to me that they had no interest for the childs grave. They didn't put any flowers down there.
Could be that the photo I saw was taken early in the moment. Maybe they reveres the child later. Who knows. I really can't say.
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  #175  
Old 01-18-2018, 07:12 PM
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Ugh I'm just glad it's mostly died out in the families! Having hemophilia must be horrible for the parent (as well as child), considering how much you'd worry. You can totally empathize with Victoria's concerns for Leopold.
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  #176  
Old 01-18-2018, 11:05 PM
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Originally Posted by Ish View Post
I don't think it's possible for any reigning house to develop Victoria-related haemophilia at this point unless they marry other descendants of Victoria. Well, at least not in the main-lines - it's possible for the descendants of Prince Guillaume and Princess Sibilla to develop it, as her grandmother was a known carrier.

.
Out of curiosity, how is it known that Sibilla's grandmother (Infanta Beatriz) was a carrier? Did any of her descendants inherit the disease?
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  #177  
Old 01-19-2018, 12:29 AM
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Out of curiosity, how is it known that Sibilla's grandmother (Infanta Beatriz) was a carrier? Did any of her descendants inherit the disease?
I don't know if it has ever been confirmed, through blood testing. It was highly concerned when she was at marrying age, that she would be a carrier for it. Several suggested marriages failed because of the concern. Her father actually considered not marrying her and her sister off to catholic princes, in fear of spreading the gene. With two brothers having it, and a third who had been born deaf, there was genuine concern the girls may carry it. Other then one grandson, who died at 4 and there are some rumors he may have had hemophilia (never confirmed), none of her descendants have suffered from it.
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  #178  
Old 01-19-2018, 11:43 AM
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Haemophilia In European Royalty

Quote:
Originally Posted by Gawin View Post
Out of curiosity, how is it known that Sibilla's grandmother (Infanta Beatriz) was a carrier? Did any of her descendants inherit the disease?

You’re quoting a post made 2 years ago, so I’m at a bit of a loss trying to remember exactly what spurred it, but I think there might’ve been a typo; Beatriz of Spain is not a known carrier (none of her sons had haemophilia), however her mother (Victoria Eugenie) was a known carrier, as two of her sons had the disease.

While the disease hasn’t surfaced in the generations between Beatriz of Spain and Sibilla, it is possible that they’re carriers as it’s an all-female line of descent from a known carrier (Victoria Eugenie); Victoria Eugenie - Beatriz - Olimpia - Sibilla. It’s unlikely (there have been a number of men born in each generation as well, but there are no haemophiliacs), but possible. Likewise, it is unlikely but possible that Sibilla’s daughter, Charlotte, is also a carrier.
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  #179  
Old 01-19-2018, 12:04 PM
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Thank you for the clarification. The original discussion was focused on whether or not haemophilia was still an issue among Queen Victoria's descendants. Based on the information you provided it appears it isn't but could resurface in the future.
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  #180  
Old 01-19-2018, 12:14 PM
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In thess days haemophilia is a fairly well-to-treat genetic disorder. It absolutely no longer has the serious impact it once had. I think it is no any issue anymore. Especially not since royals seldom marry other royals these days.
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