Victoria meets today the Secretary-General Elisabeth Wallenius and Malin Grände from Rare Diseases Sweden at the Royal Palace.
From the website of the Rare Diseases Sweden
Since the 10th anniversary and the first Rare Disease Day 2008, Crown Princess Victoria has been the patron of the organisation. Why do we have a patron, and why it is precisely the Crown Princess?
Elisabeth Wallenius says:
- We are working to highlight the rare issues. It seemed worthwhile to have a patron. Our Danish sister organization has a good cooperation with Crown Princess Mary and it inspired. I think we have a very good Crown Princess. I saw her then, and even more today, as a Crown Princess who takes responsibility and an interest in real for our area. Having a royal patron is also a guarantor of the credibility of our business. From the beginning I did not know quite how she would get involved in our questions, but she has really done that, and I guess she just accepts an assignment in which she is interested in.
Tomorrow it is time for a new meeting with Crown Princess Victoria. Why, and what are your expectations of the meeting?
- I've met her a few times before, they have been very rewarding meetings. It's to give an update on what we do, what our plans are and have a good conversation about it. Previously she has been very positive and expressed willingness to help with what she can contribute. She took part in the first Rare Disease Day 2008, and distributed our scholarships. On Rare Disease Day 2012 she was unable to be with, because princess Estelle was just born. But I hope that the Crown Princess attends the next Rare Disease Day on 29 februari 2016.
Sällsynta diagnoser - sällsynt, inte ovanlig
Victoria met Secretary-General Elisabeth Wallenius and Malin Grände from Rare Diseases Sweden at the Royal Palace. During the meeting she got an update on efforts to increase knowledge and understanding of the Association's affairs and got information for plans for the future.
Kronprinsessan i möte med riksförbundet Sällsynta Diagnoser - Sveriges Kungahus
Elisabeth Wallenius about the meeting:
"It's valuable to have the opportunity to inform the Crown Princess of developments in the covenant and how the situation is for people who have rare diseases in Sweden, in terms of both health and social care, such as medical research and volunteer work within the patient organization.
The Crown Princess is well-read and informed, genuinely interested and asked many questions. We talked a lot about what happens at the Nordic level with the newly established network of Nordic cooperation organizations for rare disorders, SBONN. We also told about Rare Disease Day February 29, 2016, and expressed our hopes that Crown Princess could participate then, in one way or another. She couldn't answer now, but we have promised to come back with concrete proposals about her involvement in the Day and some other activities. It was a very positive meeting with our royal patron who is very interested in our work and wishes us well!"
Hur gick mötet med Kronprinsessan Victoria?